This Princess Has A Pea
Updates
Breast Cancer -versary #2
Feb 10th
Just the Facts: It’s now my 2nd Cancer-versary. I was diagnosed with breast cancer on February 12, 2010. And it has been an entire year since my last post on this blog. An update is due! Rest assured, the news is all good: I am fine! In fact, I think I’m healthier than I’ve ever been!
Details: Thankfully, the last year has been pretty quiet in terms of cancer treatment. It wasn’t without some ups and downs, though and they primarily revolved around my taking the prescription drug, Tamoxifen. The doctors recommended that I stay on Tamoxifen for its estrogen-limiting effect for a full 5 years following my breast cancer surgery. The clock started in June of 2010. Side effects were manageable at first, limited to some fatigue and hot flashes, but as the year went on, things got a lot worse. The fatigue became severe, and I also experienced mental fog and assorted “female” problems. But probably the most difficult side effect for me was significant hair loss. I was losing a lot of hair in the shower everyday and it seemed to be worsening with time.
I was more than a little troubled by this and so was my oncologist. When I saw her in July, she suggested I take a break from Tamoxifen to see if my side effects went away. From the beginning, taking Tamoxifen was like having an insurance policy. We were certain that my cancer was all gone after the surgery, but the drug was to ensure that any remaining cancer cells would not be able to grow. It wasn’t until a few months later, when I had been off the drug for a while, that I could see how much my quality of life was truly suffering while I was on Tamoxifen. By the next time I saw the doctor, the hair loss had slowed down and according to my hair stylist, I even had new “baby” hairs coming in all over my head. I had also begun to feel much better in general.

My hair today, after being off Tamoxifen for 8 months. Can you tell a difference? It's not completely back to normal yet but it's getting there! The baby hairs are the ones standing up! ha ha
My oncologist suggested that I stay off the Tamoxifen a few more months and consider re-starting it in early 2012. I had made it a year on the drug, just 20% of the recommended amount of time. But even so, she estimated my chances of recurrence to be very very low, all things considered. After being off the drug for about 8 months now, I can’t imagine going back on it, and I don’t plan to. The bottom line is: I am very confident that I am cancer free and will stay that way. I know it is a risk, but I believe in the path I’m taking. My next visit to the oncologist is later this month, and I expect a good report. After this visit I will see my breast cancer surgeon for a follow up in May or June, and then I will switch to a biannual rather than quarterly check-up schedule. That’s a milestone! It must mean that the docs are pretty sure I’m ok, too!
April 6, 2012 is the anniversary of my cancer surgery. (I’m so weird about anniversaries and dates. They are all emblazoned into my memory. And each one carries its own set of emotions and issues.) On one hand it seems like forever-ago that I had the mastectomy surgery. On the other hand, I’m still trying to get used to the sensation of the implants on my chest, and the lack of sensation in many other parts of my torso. But April 6 is an anniversary I celebrate! I think of it as the day I beat cancer!
The cancer may be gone, but like a ghost, it continues its haunting.
There is not a day that I don’t think about the possibility of a recurrence. The choices I make everyday with the way I eat, exercise, sleep, think, pray, etc are all framed within the context of being a cancer survivor. The haunting is fading with time, but on some level, breast cancer will remain a battle for me to fight from now on. Good thing I’m StrongerSarah!
What’s coming up? Routine check-ups with my oncologist, breast surgeon and plastic surgeon. According to my plastic surgeon, a new variety of silicone gel breast implants, called the “gummy bear” implants, may receive FDA approval sometime soon. He believes that this style would work much better for me. (I still have some problems with my implants.) Apparently the FDA has been “almost ready” to approve them for years now, despite Europe and pretty much everywhere else having approved them years ago. Should this happen, I may consider getting the new implants before the time when my current ones would normally need to be replaced (10 years or so). My plastic surgeon advised me not to “hold my breath” on the FDA approval. In the meantime, I’m very happy to be done with surgeries.
Prayer Requests: Besides a prayer of thanksgiving for my good health, my prayer is the following: that women would take their risk of breast cancer seriously, be proactive about their breast health and their health in general, and have their screenings done on time. Sometimes it’s easy to think of cancer/diseases as things that just happen to others. But breast cancer strikes 1 in 8 women. Some say that statistic is an underestimate!
As for me, I’m doing really well. And I expect to continue for another 50 years or so, at least! Thanks so much for your prayers and support through all of this.
New Year, New Sisters
Jan 1st
Just the Facts: I had revision to breast reconstruction surgery 5 days ago. I handled the surgery and anesthesia well and returned home the next day, after 24 hours on antibiotics. The doctor actually did more revision work than he had planned, spending almost 5 hours instead of 3 in surgery. I went home with 2 surgical drains, but they were removed after a couple of days.
Details: On Monday, December 27, I underwent more plastic surgery to correct problems with my prior breast reconstruction. Alloderm was to be used over both of my breast implants. I was to receive new implants, and the left side was to be reconstructed, pulling it toward the middle. All of that was accomplished. In addition, the doctor revised the “pocket” that held the right breast as well. He discovered that this was necessary when he assessed the situation at the beginning of surgery, and discovered that the right side was beginning to shift just like the left had. This lead to an addition 1-2 hours of surgery to correct that problem, but I am very thankful that the work was done then. It potentially saved me from another revision surgery in the future.
I stayed in the hospital until the next morning when my course of antibiotics was complete. I had 2 surgical drains, one on each side, but the drain tubes were much smaller and easier to manage than those I had after the mastectomy. They still had to be tended, and pulling, twisting and catching them wrong had to be carefully avoided. I was only able to do sponge baths while I had the drains, but thankfully I was able to have the drains removed on Thursday and I’ve had no fluid build-up or other problems since then.
The pain has been a bit worse this time. That’s probably because so much work was done on both sides. The right side is especially tender. The pain meds help but I don’t like feeling groggy from them, so I’ve stopped taking them except at night. Of course, I’m still groggy from the general anesthesia anyway. But going off the narcotic pain killers is the first step toward feeling more normal, and that’s a good thing!
As usual, the “breasts” are covered with bandages. I can only tell so much about how they are going to look. But what I see looks SO MUCH BETTER than before!! I am thrilled, relieved, and also concerned that I will somehow “mess it up” again. Every time I use my arms to reach or pick something up, I think about taking it easy and worry that the glass of water, piece of laundry, etc that I just picked up will stretch or pull me too much. It’s nerve-wracking. I’m really looking forward to my appointment next week with my plastic surgeon so I can review what is safe to do. I DESPERATELY DON’T WANT TO MESS THIS UP! It looks good. I like these “Sisters”. I want to keep them!
This time around we have a recliner for me to sleep in. It has made a huge difference in how comfortable I am at night. After this type of chest surgery, lying flat is really uncomfortable. Being able to be in a semi-reclined position makes all the difference. I am so thankful for my recliner, but at the same time, I’m really looking forward to getting back to my real bed. Based on my past experience, it will probably take several weeks before I can tolerate lying flat.
Me: Nervous that I will damage the delicate work that has been done, but very hopeful. Thankful for a great doctor, good insurance, and a wonderful husband who has selflessly taken care of me every step of the way.
What’s Coming Up: Bandages come off on Thursday, when I see my plastic surgeon for a post-op appointment.
Prayer Requests: Please pray that this time I would heal properly, that the “Sisters” would stay in their current positions! Pray that my pain would continue to diminish and so would the grogginess. Pray that the blues would stay away.
Thank you: to Frances for taking care of my children while I was in the hospital and to Paige, who always finds the perfect way to help. Thank you, everyone, for reading, tweeting, commenting and encouraging me in so many ways. It has meant so much!!




